Your AS Journey



You should be a part of every decision made about your care so you can discuss and agree which treatments suit your needs. Your healthcare team, which may include healthcare professionals such as consultant rheumatologists and other specialists, GPs, specialist nurses, physiotherapists or other therapists and pharmacists, should involve you by:

  • Talking and listening to you so that they understand what matters to you
  • Giving you all the information you need to make informed decisions
  • Explaining if they think something won't work for you and why, and discussing other options you could try instead
  • Giving you details for someone in your healthcare team who you can contact if you have any questions
You can find more information about how you should
be involved in your care on the NICE website
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Information and advice

You should get explanations and information about AS. Information should be relevant to your needs and condition, verbal and written, and available whenever you need it. You might also have questions for your healthcare team.

Questions you might want to ask

  • How will I be diagnosed?
  • Will my condition get better or worse?
  • What symptoms might I get? How can I cope with them?
  • What can I do to help myself?
  • What treatments (medicines and other treatments) are available?
  • What are the long-term risks of taking my medicines? What are their side effects?
  • Is there ongoing research that might help me in the future?
  • Which healthcare professionals will I see, and where are they based? How do I get in touch with them?
  • Am I at a greater risk of getting other medical problems?
  • Where can I find more support in my area, online and nationally?

For further information and advice contact NASS at 020 8741 1515.

April 2018
This tool has been developed by Novartis in collaboration with NASS